Trial details
Paroxysmal Nocturnal Hemoglobinuria (PNH) Registry
To find out more about this trial and your cancer treatment options, please speak with your doctor.
Trial short name: PNH Registry
Official title: Paroxysmal Nocturnal Hemoglobinuria (PNH) Registry
Principal Investigator:
Cancer type: Blood Related
Cancer location: Paroxysmal Nocturnal Hemoglobinuria
Disease stage: Other
Trial phase: Other
Intervention: Other: Registry
Registration #:
NCT01374360 
Contact name: Dr. Signy Chow
Trial description:
This is an observational study which will collect information on patients with paroxysmal nocturnal hemoglobinuria.
Inclusion Criteria: • Patients of any age, including minors, with a diagnosis of PNH or a detected PNH clone, including patients previously treated with Soliris and withdrawn from treatment. (Subjects under the age of eighteen years must have parent/legal guardian consent. Upon turning eighteen years of age, these subjects must be re-consented). • Ability to comprehend and sign consent to have data entered in the PNH Registry.
