Myelodysplastic Syndromes Pathfinder
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Websites
Videos and podcasts
- Cancer View Canada
Watch "The Truth of It" video series online at cancerview.ca/thetruthofit. - Cancer Care (US-based)
Listen online at cancercare.org/connect (click on Listen to Workshops) or on your smartphone / tablet (search for Cancer Care in the Podcasts app). - Leukemia and Lymphoma Society of Canada
Watch videos at llscanada.org/education-resources (click on Educational Video Library). - Odette Cancer Centre
Browse videos at sunnybrook.ca/cancereducation (click on My Video learning).
Drop-in sessions and classes
These free drop-in sessions and classes take place in the Odette Cancer Centre for patients and caregivers.
Please pick up a calendar from the PEARL (T-wing, 1st floor, by main reception) or go to sunnybrook.ca/cancereducation (click on My workshops and classes).
- Introduction to Chemotherapy
- Clinical Trials and Your Care
- Ask a Radiation Therapist
- Tips to Quit Smoking
- Ask a Social Worker
- Ask a Nutrition Expert
- Breathe Easy!
- Art Therapy
- Lymphedema
- Early Menopause
- Ask a Pharmacist
- Ask a Nurse (RN)
Booklets
Strategies for Patients & Caregivers Living with MDS (MDS Foundation)
Please go to mds-foundation.org/building-blocks-of-hope-downloads to get your copy.
MDS Guide – Information for Patients and Caregivers (Leukemia and Lymphoma Society)
This booklet provides basic information about Myelodysplastic Syndromes (MDS). Please go to llscanada.org/publications or drop by the PEARL (T-wing, 1st floor, by main reception) at Odette Cancer Centre to pick one up.
Myelodysplastic Syndromes (Leukemia and Lymphoma Society of Canada)
This booklet provides detailed information about Myelodysplastic Syndromes (MDS). Please go to llscanada.org/publications or drop by the PEARL (T-wing, 1st floor, by main reception) at Odette Cancer Centre to pick one up.
Books
You can borrow these books from the Odette Cancer Centre / Sunnybrook Health Sciences Centre.
Please visit the PEARL Library (T-wing, 1st floor, by main reception) or call 416.480.4534 for more information.
- 100 Questions & Answers about Myelodysplastic Syndromes, 2008
- Cancer Clinical Trials: A Common-Sense Guide to Experimental Cancer Therapies, 2012
Support services
Odette Patient & Family Support
Telephone: 416.480.4623
Location: TG-230 (T-wing, ground floor)
Free services to help you manage eating, stress, worry, financial concerns, changes in health, and daily activities.
Leukemia and Lymphoma Society of Canada
Telephone: 1.800.955.4572
Website: llscanada.org/support-resources
Free services that include Information Specialists, Financial Matters, Discussion Boards, Caregiver Support, Online Chats, Support Groups, First Connection, and Patient Education Programs.
MDS Foundation
Website: mds-foundation.org/patient-caregiver-resources (click on Live Events)
Free patient and caregiver forums, global patient support groups, online message boards, and live events.
Canadian Cancer Society
Toll-free: 1.888.939.3333
Website: cancer.ca/support
Email: ccs@cancer.ca
Free services that includes peer support, support groups, online communities, a telephone cancer information service, and the Wheels of Hope Transportation Service.
Cancer Chat Canada
Website: cancerchat.desouzainstitute.com
Professionally-led online support groups for people affected by Cancer.
Gilda's Club Toronto
Telephone: 416.214.9898
Website: gildasclubtoronto.org
Email: info@gildasclubtoronto.org
Free support groups including Living with Cancer Support Group, Friends and Family Support Group, and many more.
Hearth Place Cancer Support Centre
Telephone: 905.579.4833
Website: hearthplace.org
Location: Oshawa, Ontario
Free support services, emotional support, and wellness programs including a Lymphoma and Blood Related Cancer Group and many more.
Wellspring
Telephone: 1.877.499.9904
Website: wellspring.ca
Location(s): Several including Westerkirk House (on the Sunnybrook campus)
Free programs and services, including Peer Support.
While this information may be useful, it is intended for educational purposes only. Please continue to ask your health care team if you have questions or concerns. For any other inquiries, please contact us at patienteducation@sunnybrook.ca.